In the fall after my first attack since the gentamicin injections my doctor suggested Endolymphatic Shunt surgery. This is major surgery which involves a good deal of downtime. At first I agreed to the surgery. At that point I would have agreed to most anything I was so desperate. The doctor told me that there was 66 percent chance of success and probably no hearing loss. I was okay with that.
But when I went home that evening and started to search the net for information about the surgery I found that not everyone was enthused about this surgery. Some of the websites even said that it was better than nothing. Now I was confused. I decided to get another doctor’s opinion. He had nothing but praise for the doctor but reaffirmed what the websites were saying that the surgery was not very effective.
I canceled the surgery and I’m glad I did. The moral of this story is to always do your own research and have at least one or two second opinions from other doctors.
Friday, February 27, 2009
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4 comments:
I just had my first Gentimicin injection today. The pain was rated at a 3 out of 10 (10 being the worst). It was a fullness and a burning sensation numbing my ear. The medicine that went down my eustation tube also burned. I never felt the needle. Will soon see how it works, the doctor used 10cc? I asked for the high dose but the doctor said I would be dizzy for 4 to 6 weeks. This is a terrible disease. I am a pilot and Im grounded for at least 3 months if things go right. It could be worse I was expecting one year to totally losing my medical and looking for a new job.
I hope that the gent injections help you out. It would be terrible if you lost your job due to this disorder.
good luck and stay in touch
My second day after the gentimicin procedure and I have had several dizzy spells. I thought it was going to be all over for the dizzy spells. I called the nurse and she said this was normal and this meant the medicine was working. I wish I would have known this before so I could expect it. She said it would last for another week but would subside in intensity. They put me on a dyaretic and it says it might cause dizziness....great, just what I need. After your gentamicin injection how long did it take that you were free from this dizziness? I have a great employer that is supporting what I am going through.
In my case I had 4 gent injections and it took over 2 months for my balance to recover. I was on disability.
But I have received comments from some who say that they recovery time didn't take them that long.
Hopefully yours wouldn't be as bad as mine.
good luck and stay in touch
David
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