In a past post I wrote how important it is to find the right doctor when you have Meniere’s disease. Not only is that important but it is also essential that you take an active part in controlling your treatment of Meniere’s disease.
Now I am not saying to stop going to a doctor what I am saying is not to go into any visit without being up to date on meniere’s. And really you should think this way about any illness that you have, information is very powerful and puts you in a position where you can make informed decisions.
As I have written in the past I went to many doctors before I found one that I was comfortable with and even with him I didn’t agree with everything that he said. After I thought that my gent injections had failed, he suggested surgery; I did some research on it and even got a second opinion from another doctor. I decided against the surgery. I was glad that I did because I found out that the gent injections finally did work.
Why it is especially vital to find out all that you can about meniere’s is the fact that there isn’t a cure. That tells me that there is still a lot to be learned about why this occurs and how it can be stopped.
So read as much as you can on meniere’s and don’t be afraid to ask your doctor questions. If they aren’t responsive to your questions there are other doctors that will answer them.
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Sunday, January 10, 2010
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4 comments:
This is so true! My first ENT diagnosed me with M after 6 months of visits. She said I should take betaserc and learn to live with it. The next visit I had read more about M and wanted to ask her about several treatments I had read about. So I said: I would like to ask a few questions. And she looked surprised and said: Why? Didn't I give you the information leaflet?
That's when I started having doubts about her. Also, every question I asked her was put aside as not relevant. Other medications, gent treatment, everything was not relevant. You just have to learn to live with it. For me that was not acceptable.
After that visit I went to another hospital. They even let me do tests I hadn't done before. The diagnose was the same but they offered a gent treatment at the same time. I decided to wait for a bit but keep the option open and that was ok.
I'm still in a bad episode, but at least I know now that I can trust the ENT.
One of the first doctor's that I had told me the same thing, to live with it! Needless to say I ignored him and continued on till I found a doctor who understood meniere's and how it effected the lives of those who had it.
keep in touch and let me know how you are doing and thanks for the comment
David
We are in our third health insurance group in the last 2 years since my son's diagnosis. We are hoping this new ENT will actually be able to improve his quality of life. It has been so disappointing to him--and he is a very brave kid who seldom ever complains.
Bless you David
I am so sorry to hear about your son's condition. You are right he is very brave to be able to put up with this.
Keep in touch
David
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