Wednesday, February 17, 2010

My last appointment with my Meniere’s disease doctor

I had an appointment with my otolaryngologist today. The last time that I saw him was in August (I think). I had very low expectations going into the office visit and strangely enough I was still disappointed.

The reason for the visit was I needed a refill on one of my medications. When I called last month to get it refilled his office told me that I had to make an appointment before they would give me a prescription. I didn’t really mind because he always gave me 12 refills enough to last for an entire year. And anyway I wanted to talk about a few things with him, mainly that the past few months haven’t been too good. I have been eating the Antivert and Phenergan almost on a daily basis. As you know both these drugs are sedatives and makes you very tired. So I have been walking around like a zombie on most days.

I also wanted to talk about getting a prescription for Serc. I have read so many encouraging things about it that I thought that I would like to give it a try. I didn’t think it would hurt to try.

Well, my appointment was at 2:00, they gave me a hearing test first that lasted about 10 minutes. My hearing, as I expected, had gotten worse especially in my bad ear. Where I had really gotten bad was distinguishing words that I heard, that dropped by 20 %.

At that point I was told to go back out to the waiting room and the doctor would see me shortly. Of course that didn’t happen. I waited for over an hour and a half before I actually got to see the doctor. The first thing that I asked him was about the Serc. It dismissed it out of hand and said that it didn’t work and he saw no value in it. I then mentioned that it was used for Meniere’s disease in Europe but he still didn’t think it worked.

I then told him about my recent problems and he suggested another gent injections. I reminded him that I had a very difficult time after the last gent injections and I didn’t want to do that at this time.

All in the entire office visit lasted about 5 minutes and needless to say I was very disappointed. Now I believe it is time for me to look for another ENT!

It was a very frustrating day.

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4 comments:

Anonymous said...

This sounds like my doctors visits that I experience in Santa Cruz Ca., It has been ten years snice I was diagnosed with Meniere's Disease. I feel that my own practical knowledge and understanding of this Disease has been so much more helpful than from any four doctors that I saw. Keep on this facebook blog and read what other people do to help themself, I think you could go into remission!
Good luck my friend.................. Susie McCullough

David Stillwagon said...

Susie,
thanks for the encouraging words!
David

Anonymous said...

Hi
I have had Meniere's for about 6 years now. I have been taking Serc and a diuretic since i was diagnosed. I'm pretty sure that the SERC is the thing that keeps things under control. I Live in the UK where SERC is commonly prescribed to meniere's patients. I completely sympathize with you, I truly believe that going to the Doctors is generally a waste of time. I have embarked on a mission to find my own solutions. You need to speak to Meniere's specialists wherever they may be.
There are currently trials going on in the UK that are comparing Gentamicin injections with a new Steroid injection ( which is apparently not destructive to the hearing)
Good Luck david - Regards Ed

David Stillwagon said...

Thanks for the comments Ed. I am starting to believe that going to the doctors is waste of time too.
That is interesting about a new steroid injection.
stay in touch
David