After my last trip to the doctor, I don’t know when I will be going back, if at all. As I wrote on this blog I wasn’t very satisfied with the visit. I know that I am not alone in this regard. For some reason it seems difficult to find a doctor who truly understands the emotional aspect of this disorder.
Of course very few ENTs have Meniere’s disease so they don’t really have a grasp on how debilitating and frustrating this is. One of the first ENTs that I saw told me to live with it, like how some people live with fallen arches. Yes, it compared meniere’s to fallen arches, which is ridiculous, considering all the procedures and medications that you should try before throwing in the towel.
I do know that I need to occasionally go back to the doctor at least to have prescriptions filled but other than that what is the use. I certainly don’t want to have another gent injection because I had four done in 2008 and I don’t think that another would help. I have little doubt that there isn’t any balance left in my bad ear so another shot wouldn’t make sense, at least to me.
One thing is for sure I will continue to research the internet on Meniere’s disease. The web has been a godsend for information about everything and it is very important to continue to learn as much as possible about inner ear problems, tinnitus, vertigo and meniere’s. The feedback that I have received from this site and from social media sites has helped me tremendously not to get discouraged about my situation.
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Sunday, March 7, 2010
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4 comments:
Hi David
I'm in England but fully understand where your coming from. I got sent to see a specialist who is a " expert" on MD. The trouble is he loves to research but does nothing. If I go to see him he will be really interested in how things are, what effects me etcetera. But he has not once offered ANY advice on how to manage the symptoms or anything else. I don’t bother going to see him anymore as it is a waste of my time and money.
All the best info and advice I have received has been off the net from people like yourself.
Thank you for all your efforts.
Thanks,
It seems that there needs to be more understanding of the harm this disorder does to people's emotions.
I appreciate your comments and stay in touch
David
I go to a neurotologist/ENT in Houston and he is wonderful! He has explained to me what to expect, offered options to try, if that doesn't work, we'll try something else. I told him that I was told by a coworker that they knew someone with MD and they didn't have the problems I have. He said, then they don't know anyone with this disease. He has a number of years experience and dismisses nothing about what I am going through or feeling.
I am so glad to hear about someone having a positive experience with their doctor. You are really fortunate.
Thanks for the comment
David
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