I knew that it was too good to last! I hadn’t had a major spinning Meniere’s disease attack in quite a while. Over the past month I had felt bad at times and light headed but none of the mind bending spinning around me. My second gentamicin injection was last Wednesday so it was only a matter of time before I got sick.
Yesterday afternoon I was on the computer doing something when my head felt light and my eyes seemed to jump a little. No real call for concern it happens a lot especially if I have been on the computer for a long time. I got up from the computer and took an Antivert and lay down. In the past when I got sick I would focus my vision on the ceiling light, if it started to move then I knew there was a problem. I thought that every thing was okay because the light fixture that I was staring at didn’t move. I decided to close my eyes and try to rest.
That was a bad move on my part.
My head jerked to one side and I opened my eyes to see the light fixture almost a blur from spinning. I felt nauseous. I kept my eyes staring straight ahead as I tried to stay calm. The spinning slowly came to an end. I stayed in bed I guess for another hour before I felt safe to get out of bed.
This was a bit surprising but meniere’s attacks do happen after gent injections. So at least I was home and not out somewhere, especially somewhere driving! I can expect more of these attacks for the next couple of months till my balance becomes adjusted again.
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Sunday, June 27, 2010
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10 comments:
David:
did you have a full feeling in your ear or an increase in ear pressure prior to the attack or an increase in tinitus. I hear the gentamicin is supposed to take away the full feeling and tinitus just curious. Thinking about the shots myself
Ronald
Ronald,
I did have a full feeling in my ear before the attack occured. The gent injections are supposed to stop the attacks, hopefully this time they will.
as for tinnitus I'm not sure if the gent injections help with that.
thanks for the comment and stay in touch
David
David:
do you know if you can treat both ears with gentamicin and avoid permanent disability (I still want to be able to walk, ride a bike, work .....)
thanks for the site. Hope you are feeling better after the injections.
Mine took about 6 months before the dizziness went away. Now in my other ear.
Kathy
Kathy
I don't know that you can have gent injections in both ears because I believe that they kill your balance in the ear that is getting the injections. so if you had them in both ears your balance would be gone. I might be wrong it is always best to check with a doctor.
thanks for the comment and stay in touch
David
David (and Kathy),
You definitely can't do gent in both ears, as it damages the balance. My doc said that if you did it in both ears, your head would be shaking for the rest of your life... Yikes...
I was wondering David how many injections you've had total? I had one a few months ago, it helped for awhile, and has now worn off. I'm going for another. I'm nervous about more hearing loss... How's your hearing?
-justin
David:
I was wondering after you had you first round of gentamicin injections did you have any caloric/vestibular function after the shots accoring to your eng test. I'm curious because they say gentamicin destroys vestibular/balance and it is permanent which should cure the dizziness, but I see a lot of posts and even youself having to go back for more shots. I am thinking about the shots myself, but am starting to wonder if they really do offer a permanent cure or is it just temporary. I was also wondering if you can't get them in both ears what is the point of low dose shots that dr. Hain recommends. It is all confusing. It is something they describe as permanent yet many people I talk to have to go back after a few years/months for more shots. They must supress the vestibular/balance nerve and not totally destroy it.
Thanks for the site and good luck. Please respond.
Jeffrey
@Justin
I had 4 done in 2008 and 2 so far this year. My hearing in my left ear is bad and getting worse, althought it wasn't that good before the gent injections either.
David
@Jeffrey
I thought that the initial round of gent injections was going to kill all the balance in my left ear and then things would be good. Unfornately it didn't happen that way so hopefully this next round will do it.
I guess the gent injections are like most other treatments for meniere's disease, they might work for some but not for everybody.
stay in touch
DAvid
David:
if these don't work what do your doctors recommend next.
I have meniers and I don't believe in burn out. It would seem in your case that you would have reached burn out stage after this many year and 6 gent injections. Sometimes I think to myself tht mybe I should just go ahead with the laby. In the end our hearing is probably gone anyway and maybe I cn get the cochlear implants. I don't know.
Talk to you soon. I was also just curious if you know whether they still do the intramuscular streptycin for bilateral meniers. I read a lot about it on the Internet for bilateral patients.
Mark
Mark,
I am not sure about the streptycin for bilateral meniere's I'll look it up.
as for the laby some have found success with it and others haven't. In my own case I have considered it but not right now. It wouldn't matter much to the hearing in my left ear because I don't have very much left.
take care and stay in touch
David
i`d tried the different courses of tablets, but having 20 attacks this year from march i had the gentamiacine injection, it took about 4 weeks 2 work my head felt as if i was a nodding dog, hadn`t had a proper attack since the 6th oct, then thursday night had the ringing from tinitus turn in2 a loud booming noise went 2 bed woke up 2 a bad attack the consultant said i had fluid behind my eardrum that probably gave me the nodding dog feeling but he didnt say how long the injection last for.
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