I get a lot of interesting e-mails that helps me immensely, not only from the information that I get about certain procedures and medications but also about how people are dealing with meniere’s. I feel really grateful for that. I received an email the other day on my latest post about reexamination of my meniere’s disease. It is from Susanna and she writes about a special oat-flakes that helps with meniere’s among other things…
I`m one of those who have tried a lot to get better. At the time being I´m on diuretic, one pill aday (in the morning). Sometimes I can take two pills. I also take Betaserc 4x16 mg - two in the morning and two in the evening. My doctor also prescribes special oat-flakes called SPC-flakes. It contains something called anti secretoric factor. From the beginning the flakes were ment for people with Crohns but they found out that it also is a help for us with Menières. I don´t know if it helps but my stomach is better than ever :)
I have also got cortison-injections in both ears. I´m so sorry to hear that your gent-injection was so painful. I think mine hurt, but just a short while. But I got a spray on my eardrum first to take away the pain (I don´t know the english word.).
I also tried the Meniette a few years ago. I know that some people get better just from making "the hole" in the eardrum before using the Meniette. I didn´t.
As I think we all have noticed - it`s not possible to find out what treatment that helps and what doesn´t. I have accepted that Mr Menière lives his own life despite what I do. So I just try to do things that make me feel good and happy. Maybe my anti-depressive (?) pills helps me feeling rather ok.But life CAN be good - even with Mr Menière as a constant follower.
Susanna
I am glad that Susanna is dealing with her meniere’s so well. Unfortunately it sounds like the Meniett didn’t help much, it works for some but not all. I have also heard of other folks using anti-depressants also but I don’t know if that indirectly helps the meniere’s or just the depression.
Feel free to comment and please subscribe to my RSS Feed
Thanks
Wednesday, June 16, 2010
Subscribe to:
Post Comments (Atom)
Posts
4 comments:
David
I'm sorry to hear about your problems with the gentamicin.
Who is your doctor in Atlanta. I am from south Georgia and I have seen dr Steenerson in Atlanta dr Murphy in Atlanta dr mattox at Emory for
my meniers and I finally got relief from the shea clinic in Memphis. They use streptomycin and dexamethasone combination. From what I hear streptomycin is stronger than gentamicin. I have known several friends who were immune to the gentamicin for some reason. I read an earlier post a few days ago and I agree, shea ear clinic is the only one who could solve and put an end to my constant dizziness.
Much love Julie from Macon Georgia
I am writing from Spain and I would like to know more about the SPC-flakes.
I have been looking for the product in Internet and I have seen only literature and shops in countries of northern europe.
I will appreciate more information about that kind of food.
As I said I am from Spain and I have Meniere Disease. I use Serc and Gingko Biloba daily since three years ago that I have a lot of noise in my left ear.
The good news are that when I was 18 I lost a 40% of my right ear but now, that I am 40, I listen almost 100% in that ear.
So, I think this period is not permanent for me.
Thanks and congratulations for the blog.
Sharing your experiences is very appreciated for me.
Thanks.
Marcos,
I was interested learning more about spc-flakes also but I haven't found much on the web.
There are a lot of people who use serc and gingko biloba and it certainly seems to help.
I am glad that you were able to regain your hearing. It is always good news when people get better.
thanks for the comment and stay in touch
David
Susanna,
Where do you get your SPC cereal??? Please!
Come to www.menieres.org/forum and share with us desperate folks!
Post a Comment