It has been over a week since my last gentamicin injection and things are pretty good. I still feel like I could have an attack every day but I usually take medication before that happens. I am still on disability and I don’t know how long that will be because I have 3 more gent injections to go through. I hope that my meniere’s disease is controlled by these shots because I am not sure what my options are after that, maybe the Labyrinthectomy surgery.
My doctor mentioned that he had another patient who went through 2 sets of gent injections to no avail. Finally this patient decided on the Labyrinthectomy surgery. I had received an email from someone who had the surgery done and it seemed to go all right for them.
Here is the comment.
I had a Labyrinthectomy in 2001 due to a 10 year ordeal with Meniere's in my left ear. My right ear is doing great. I have had a Bone Anchored Hearing Aid (BAHA) since then for the left ear. The only symptom that has remained in my left ear from the Meniere's is the tinnitus. I may be deaf in the left ear, but I have been contending with this tinnitus since 2001(really since 1992 when the Meniere's began) & I am finding as I get older, it is getting worse. The good thing is that my Meniere's did not go to the other ear. My otolaryngologist (at the University of Wisconsin Clinics & Hospital-Madison) told me years ago that if you don't get Meniere's in the other ear within two years of the onset of the first ear, you will not get Meniere's in the other ear. Good luck all you Meniere's sufferers. I know your ordeal & empathize with you.
This is interesting because I didn’t think that you could use a hearing aid after this type of surgery. I will definitely look in to that. Also my doctor told me the same thing about bilateral meniere’s, if it doesn’t go into the other ear within a few years then it probably won’t. That is good news but with Meniere’s disease nothing is written in stone.
The thought of surgery scares me quite a bit, because I also received a comment from someone who had a terrible time with their surgery. Here is Marsha’s story from my squidoo page.
I to suffer from Meniere's. I have had it since 1997. I have had the ear sac surgery was ok for awhile but it came back with a vengeance. I would have attacks that lasted 5days. I was very sick and some mornings wish I just wouldn't wake up. I did the diet no salt no caffeine. Watched what I ate sit had attacks. I took different drugs Antivert or valium did not work for me. About 2 years ago I had my inner ear removed hoping this would work. I still have balance issues can't climb stairs ground has to be level or I will fall can't drive a car because I fill drink and can't focus on the road. I still have ringing which is even worse now then before. I am also on SSD because I can't work. This disease makes me fill so worthless I used to be very independent now I have to count on my family to take me places. They told me that this surgery will make it better well you can't prove that to me. I still have attacks not as bad but bad enough to the point I don't want to even leave my house. People don't understand how scary it is. I worked for 20 years taking care of people and now I can't take care of my self sometimes. Well thanks to those who read this makes me fill better knowing I am not alone.
I feel terrible for Marsha and anyone else who have had such a very bad experience with surgery because this type of surgery can’t be reversed.
Hopefully the gent injections will work and I wouldn’t have to even consider surgery. That’s what I hope for.
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