If you have Meniere’s disease then you probably have heard about gentamicin injections. They are injections into the ear through the ear drum that supposedly kill the balance in that ear thus relieving some of the problems of meniere’s. I am on my 2nd set of shots with one to go. Are they effective, for some people they are and some they aren’t. After my first set I thought that I was through with them but my meniere’s came back and I decided to get another set of shots. I am hoping that this time it will work although I can’t see me going back for another round.
A couple days ago I received a comment enquiring about the low dose gentamicin shots.
This is from Paul…
I did read Dr. Hain's stuff and it did make sense to me, I was hoping to find someone else who has been through low dose injections to hear their experience. I have been pretty wobbly the past 4 days, but I think it is starting to taper off for me which is what I was told would happen, so far, so good, though I wouldn't want to feel like this long term. I'm willing to trade 4 weeks of this for relief from the vertigo, and was led to believe that in 95% of cases this will eliminate the vertigo altogether. Seems too good to be true, although going thru this is no picnic, I wouldn't want to feel like this long term. I was hoping to find someone who could corroborate a similar experience in the 4 weeks after the injection, and who could tell me if their vertigo had recurred after a low dose treatment. Thanks. Paul
The only place that I had heard about it was from Dr. Hain’s website (a wonderful resource for Meniere’s disease). He suggests one or two shots a month apart as opposed to the high dose where there are 4 to 6 shots. The advantage of the low dose as opposed to the high dose according to Dr. Hain is there is less risk involved with the low dose. He also says that he has had a lot of success with the low dose gentamicin.
If anyone has had any experience with the low dose gentamicin I would certainly appreciate any feedback
Thanks
Sunday, July 4, 2010
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3 comments:
i had one low-dose gent injection about 6 weeks ago and i am still on a definite roller-coaster ride as far as recovery goes. i see my oto next friday, the 16th, and am very curious to see if this is normal or if he'll consider one more injection. he had said before he would do only one. my fear is as always that i'm going bilateral. despite the tests in april that showed i am not bilateral, i think i will always have that fear.
hope you are recovering well from your injections.
Nicki
Nicki,
lets hope that the meniere's stays in one ear for both of us.
talk to your later
David
I had Low dose two years ago. I began really feeling the effects about a week later. It was horrible for about 6 weeks after that then within a few months I became better and better.
I had to repeat them a year later and had 4 doses all 2 weeks apart from each other. I didn't get as sick that time at all. I did get a little more vertigo for two weeks but no where near as bad as my previous baseline.
Today I had a "High dose" injection. It took about 20 minutes to get it all in. I am already getting pretty ill with it. My vertigo returned about 2 months ago (again not as bad as before the first treatment) I have a decent migraine and my ear is very painful (it was stuck times) I am half debating if I can stick through the vertigo and nausea tonight or go to the hospital. I have no idea how long it will take me to get sick. I am hoping I will though just to get this over with and that I may get at least another good year at the end of it or maybe even a few years. To me it is worth it.
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