I have been on disability for about 4 months now and it looks like I wouldn’t be going back to work any time soon. In fact I am considering long term disability through a program that my company offers. I’m not happy about this but there doesn’t seem to be any alternatives right now. What do I do while I’m at home? Not much because it seems every time I try to do something I become dizzy or have an attack. There is a lot of wasted time with Meniere’s disease.
It seems that I could be using my time more productively while I am at home but the attacks seem to stop me in my tracks when ever I start something. Even things like surfing the net can bring on an attack so I have to limit the amount of time that I am on the computer. I used to love to read but after just a few minutes my head begins to swim and I have put the book down.
Time management is important to everyone especially those with illnesses like Meniere’s disease. I have trying to set goals for my self so I can at least accomplish a few things every day. It is important for me and my emotional well being to feel that I am still be productive.
Before I end the post I just want to say thanks for all the great responses from the post Meniere’s disease, sacrifices and understanding. I really appreciate it.
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Thanks
Sunday, September 19, 2010
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10 comments:
David:
there is a lot of wasted time with menieres, but it is important to find things to do to keep you busy, go for a walk, read a book, fix (clean) up the house, find a hobby like photography or bird watching in the park.
David: it is so wired, I have suffered with MM for 22 years and here it is I am finally starting to see progress made on so many fronts. It does give me hope for the future. If I were a young person and just found out I got MM I would feel pretty good about my outlook and prognosis. Commenting on your last post, the Popular Science article was fascinating, especially the picture of how it works in the ear. When I got diagnosed, this was just a dream for me and now after years of suffering it could finally be my reality. How cool!!!!!
Thanks
Carla
David:
it is Important to stay busy with MM. There will always be those days or three when you can't do anything but lay on you back in bed. I find I get depressed and down when I have too much time on my hands and just sit around and feel sorry for myself. To stay busy now I have decided to build a canoe. I work on it the days I feel ok. My dream is to give it to my sons one day as a gift. My friend who has MM has decided to restore an old car, he previously used to restore old furniture.
David: everybody who has vestibular problems such as menieres should
find a copy of last months Popular Science magazine (college edition). Truly inspiring as well as reassuring to know people are working on a solution for all
people with vestibular dysfunctions. Have you seen it yet David? If you call the lab they are all very nice and answer all questions.
Love to all
Tim
David:
I try not to waste my time and energy thinking About MM 24/7, but it is difficult
because it consumes so much of our lives and you never know when an attack might come. Even if you can't do much it is important to stay positive otherwise depression sets in as well.
David: I often think about what I would do if I got better. I would
go for my dream of learning how sail. Maybe it will come true in the next few years with all the progress being made with vestibular prosthesis. I was wondering if anybody has contacted the lab of Dr. Santina @ Hopkins. Went to bookstore and new edition was already out, missed it by a few days.
Jennifer
David:
I pass my time when I feel ok to do things by building a canoe. I hope to give it to my son one day as a gift. That is my dream right now and what I do to pass time. I used to restore old furniture but now I want to build a canoe.
David: I live in Germany and I can't get Popular Science. If you have seen article could you please comment? I would fly to the states tomorrow if it was available.
Johan
@Carla,
You are so right about keeping busy, doing the things that you are capable of doing. Luckily this blog keeps me busy.
I just got a hold of the Popular science article on Dr. Santina and his balance device. The next blog post I’m going to write about it. It is all really exciting.
stay in touch
David
@Jennifer
I hope the day will be soon that you will achieve your dream of sailing. We all have to be patient but it really looks encouraging.
I am thinking about sending an email to Dr. Santina in the near future.
stay in touch
David
@Johan,
I just went to the library today and made a copy of the article in Popular Science I will be writing about it in an upcoming post.
That is really a cool idea building a canoe. Good luck and I know your son will cherish it.
Stay in touch
David
@ Johan:
it is good you decided to build he canoe to pass the time with your MM a lot less strenuous and cheaper than car. I posted here as well, thought you had started the restoration of car. If you need help with canoe send me an email. I do not have yours. It is imperative to stay busy and motivated win this dumb disease. Good to see you are doing better Johan. Hope everything is good in Germany. You are in my thoughts and prayers.
Tim from support group.
David:
do what you can, when you can and do not let negative thoughts creep in, nobody will understand what we go through, but they are not supposed to. Just like we can't identify with being blind or suffering from cancer. The most important thing is to stay in the moment and don't let tomorrow scare you. Make good decisions today and benefit in the long term. Looking forward to the comments on Popular Science article. I have not read it, but have hears from many it could one day solve our problems.
Michael
Michael,
I have to say at times negative thoughts and fear get the best of me but I am working on that.
My next post will be about the popular science article, it sounds promising.
thanks for the comment and stay in touch
David
David:
good stuff, love the blog. When I get better I will rent an R.V. and go see America. Make the best of things when you are feeling well. Time is the one thing we never get back. Went to my support group in Florida tonight and everybody had something to say about Santina and popular science article. Somebody said the device is now smaller than a quarter and they are trying to make it wireless. Have not seen the pictures or articles. Maybe in a few years we will all be talking about MM in past tense. That would be really awesome.
Kailon
Hi Kailon,
You are so right about not being able to get time back, but hopefully in the future we will be talking about mm in the past tense.
Stay in touch and let us know how you are doing
David
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