This is a rather difficult time for me right now because my job has ended and I am waiting on the decision about the long term disability from that company that handles my former employee’s disability cases. I have also applied for Social Security Disability which usually takes a good deal of time to be settled. So while it is tough I do have hope especially with the device that has been developed Dr. Rubenstein of Washington University and the devices first patient, Gene Pugnetti. Even though it could be a while before this device has all the kinks worked out of it I am confident that it will be eventually successful. And don’t forget the device that Dr. Santana is working on.
Here are two good links about the new device...
http://www.yakima-herald.com/stories/2010/11/13/a-quest-for-equilibrium
http://www.king5.com/health/Menieres-implant-passes-first-test-109301209.html
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Wednesday, November 24, 2010
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5 comments:
David:
I am in same position as a teacher, impossible to work with 35 kids in a classroom and have mm.
David: all we have is hope with this beast.
I think dr Santina and dr Rubinstein will pave the way for technology to solve the riddle of vestibular disorders in the coming years. I heard dr rubinstein getting approval was big because it has gotten the ball rolling down hill.
Paul
Thanks for the update David. I'm in a similar position as I am about to apply for a new benefit at the time when government cuts are tightening the eligibility criteria. I'm pretty good when I'm at home but if I think about a couple of hours of commuting, time sitting in meetings, the noisy office environment and so on... I think I'd only last a few days!
What I'm concerned about is that I'll be assessed as being able to work, but for something like envelope stuffing! I'd have to do that work to get some supplementary benefit, and that would mean little time or energy to keep up with what I actually know, which is software development. It's not that I can't do any job, it's that I can't do MY job (at least, not in the way that I used to).
We'll see what happens but even with the recent advances Meniere's is still a long game. I'm thinking I might be better re-training onto something that might be more compatible with the illness, so that it won't be all-or-nothing with the stress that thinking about that can bring.
@Paul,
You are definitely right
thanks for the comment
David
@Jeff,
Applying for disability can be very difficult especially with something like MM. Good Luck I hope that you get the support that you need.
David
David, I'm sorry to hear your job has ended and that you're wrapped up in the red tape of applying for long-term disability. That must feel pretty discouraging and scary.
I'm a little concerned myself, with a new job and the recent symptoms I had from the "reactive ear" I mentioned on the Labyrinthectomy thread of this blog... it's very difficult to start a new position and really charge into it when I feel as bad as I did last week, and I'm not sure how patient the new employers will be. I've got my fingers crossed that I can make it last long enough to show them what I can do when I'm not bogged down in Meniere's hell.
I hope your situation improves soon. And I really hope that the work of Rubenstein and Della Santina produce excellent results really soon. All of us who suffer with this malicious syndrome need a break.
Failing a cure, we could all use a really big win on the lottery. :)
thanks Peggy,
I think in the not to distant future all the devices out now will give relief to all of us.
Good luck on your job I hope everything works out.
David
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