A very common problem of Meniere’s disease patients is the lack of understanding that most folks have about this disorder. While it is getting a little more coverage in the press because of the recent developments regarding an inner ear device that hopefully will control vertigo, it is still difficult to for some people to understand what the sickness is all about. For some reason that can’t seem to see how Meniere’s disease limits your activities and how it plays havoc on your emotions. I have been lucky because my wife has seen firsthand what Meniere’s can do to a person physically and mentally. She is very supportive. I also have a 9 year old son who sometimes understands and sometimes he doesn’t. Children and Meniere’s disease can create a situation that must be carefully handled.
I have to admit that I sometimes get frustrated with my son when he wants me to do certain activities with him, like go on amusement rides, especially roller coasters. I wouldn’t even want to watch a roller coaster let alone ride one. But he still gets to go on the rides because his mother will go with. The same goes for water park rides, once again I can’t do that but my wife can. My son enjoys his mother’s company but I know that he wishes that I could do things like that with him, and I do to. He constantly asks me if “I wasn’t sick” would I go on the ride with him. I guess he sometimes wonders if it isn’t just my illness that holds back my participation. And that hurts.
With time my son will have a better understanding of what I am going through.
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