Meniere’s disease is a difficult thing to deal with for a few reasons. One there is no cure which means you have to somehow have to lessen the symptoms of it, like vertigo and nausea. Another thing is that it seems difficult at first to distinguish whether you indeed have Meniere’s disease or maybe some other inner ear and balance problems. Then if you are diagnosed and you think that things can’t get any worse, unfortunately they can. Having Meniere’s disease in both ears (bilateral) is really challenging.
Peggy wrote in a comment about having worries about becoming bilateral
Here is the comment…
David, I have a concern I'd like to open for discussion, but I don't know where to put it. I'm afraid I'm starting to go bi-lateral. I've noticed in recent weeks that my right ear, which was previously unaffected, has started ringing. I'm very frightened about this. Mind you, it would really increase my chances of getting SSD, but still... I don't want to lose all of my hearing and balance. But I'm not sure what to look for. I'll make an appointment to see my ENT specialist, but I had to get through a weekend now before I can call them.
For those who have bi-lateral MD, how did you first realize it was affecting both ears??
For those who have bi-lateral MD, how did you first realize it was affecting both ears??
I hope that isn’t the case because being bilateral seems to complicate how to treat Meniere’s disease. I was told by one of my doctors that when one ear loses its balance the other ear is supposed to pick up the slack. What happens when both ears are gone?
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Challenges with bilateral Meniere'sHow would you know if the meniere's went to the other ear?
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48 comments:
I have had bilateral Meniere's for several years. It was diagnosed in 2007 but my ENT feels it was bilateral before then for some time. Both ears have ringing constantly, both have fullness, and neither side is dominant when I go into an attack. When the ringing pitch changes sometimes it will more so on one side than the other, sometimes not. This often happens right before an attack but not always. The symptoms just are there on both sides at all times. Hearing loss that is occuring is about the same on both sides as well and was tested again just last week with the same results. Some days it is hard to function. My job laid me off as that made it hard to meet all of my deadlines in a deadline driven position. Fortunately, my private disability insurance picked up. I just do as many do and go ahead and try to make my plans, knowing they are always subject to change.
Its not "official" since I cant endure the 3 hour trip to my ENT. But I've been Bi-lateral for a little over 2 years now. The biggest problems I've had with it is my left ear has a different spin than what I'm used to with my right,they refuse to "harmonize" with each other so I stay very distracted & disoriented (hence the sound studio in my head), drop attacks are occurring more frequently & I've become quite a klutz.
Unlike Anon.,my "new" ear has no fullness,hearing loss is slower on that side.
Like wise I've noticed my attacks occur when the "new" side changes tone.
I'd like to tell everyone that getting a Betta might be a good idea. Got 1 for my daughter & he makes a bubble nest when the pressure changes never fails for me to have an attack 3 days later. I've decided he senses it before the pressure changes enough to bother my ears, so he's become my "adviser" & prepares me for an attack.
Mrs.Tater, how long after your first ear went into MD did the second one start? I've had MD in my left ear for nearly 10 years. The right one just began showing signs of tinnitus recently. Now, I have one kind of tinnitus on the left (a low roar) and another on the right (high-pitched ringing). Like you, I'm very distracted and disoriented, and I've become very clumsy. But I'm not having full-blown attacks -- yet.
David, I completely agree with your question about balance when you are bilateral. I had the surgery on the left ear to make the attacks stop, but that's not going to be an option if I start having attacks because of the OTHER ear.
This is why I'm so scared. I don't know what there is to do except endure it, if it starts on the right, too.
I wrote a long comment, and it didn't go through, so I'll try again.
I have bilateral Meniere's. My doctor at Duke told me I was the first person he has seen who went bilateral after having Meniere's for so long. (about 12-14 years after my first attack). he said normally if you haven't gone bilateral after 5 years you won't.
I was not originally diagnosed by him, so I guess something else could have been going on the first few years. I didn't have attacks often then. And my Dr. at that time didn't do vestibular testing...so...
But for over 2 years now I have had bilateral meniere's.
I think the first time I really noticed was during an attack I noticed the hearing was greatly diminished in my left ear (not my usual ear).
I've noticed many people get very worried when they feel the tinnitus has gone to their "good" ear. Many people get tinnitus as they get older, it doesn't mean you are going bilateral.
I wouldn't worry so much until I had a hearing tests, and possible vestibular testing to be sure.
There are other treatments.
I've had a few.
I'll be happy to talk to Peggy more. Feel free to get in touch with me.
wendy from http://picnicwithants.wordpress.com
I have symptoms in both ears. I was first diagnosed last year with MD in my right ear. I get ringing in that ear and that is the side I have hearing loss in. But I had originally gone to my doctor complaining about my left ear, which is the side that I feel fullness on. He told me I definitely had signs of it in my left ear but not enough to diagnose the left ear with MD. I hadn't noticed ringing in my left ear until this past week. And this past week I have been off balance and unfocused the whole week. It has been so frustrating! And scary because it seems that all of a sudden this disease is progressing so quickly for me.
As I mentioned in another post, I have left ear Menieres, and had surgery on that ear in January with pretty good results.
About a month ago I began having tinnitus in my right (good) ear. Had not had that before.
Then I felt some "filling and pressure" in the ear.
Around 2 weeks ago began what I call "warning tones" from the right ear..followed a week ago with full blown vertigo attacks that were daily for a week.
Also noticed that I spun in the opposite direction.
All I could think when it happened was.."are you kidding me?? Give me a break!"
I am managing by keeping the ear sedated every day. It's that or attacks.
On July 6 I have an appt. w/ the ENT specialist who did the surgery on the left ear, and they will check the hearing then. I assume if it's down they will schedule the Vestib. testing to check & see where the right ear is at.
No doubt for me it's the right ear because I can not only feel it in there, but I spin the other way.
Like David & Peggy, I also wonder what can really be done if you go Bi-lateral.
I'm frightened at the thought of losing the only hearing I have left too.
I'M WITH YOU PEGGY...very scared about the good ear being involved now!
.
Oh, Lauri, that SUCKS. I'm not having attacks these days, but I realized this morning that I notice I'm saying, "What?" a lot more often. That makes me think my hearing in the right ear has been affected. I'm going to call the doctor's office tomorrow and see what kind of testing they recommend.
Wendy, I've also had Meniere's symptoms for a long time... at least since 2000 that I'm aware of. And my doctor also said it's very rare for someone to develop MD in the second ear after that long. However, my husband likes to say that if the chances of something happening are about 2 in 1,000, it will happen to ME. *sigh*
I'll start with the doctor and see what she says.
Hello, I'm Dutch so please forgive my somewhat clumsy English.
I'm now 52 and I have Meniere's disease since I was 34. I think I had bilateral Meniere almost from the start. The first symptoms were a feeling of fullness and Tinitus. Most doctors don't know how to cope with bilateral Meniere, so I have not since doctors for years. I have problems with keeping balance 24 hours a day and my right ear is deaf, my left ear is going into the same direction. I have no long attacks anymore (once they took 20 to 36 hours), but have several short ones during the day and night and sometimes they are longer. I have trouble focusing my eyes.
On a Dutch forum I 'spoke' with other people who are bilateral and nobody knows how it goes when your balance organs hardly work. I'm not too concerned, but....the prospects are not too good.
The figures I've seen (I think it was an American website) say that 25 to 40% of the patients go bilateral. That means that 60 - 75% won't.
I can't work anymore but I try to keep busy with fun (my blog) and necessary things (cooking, shopping, taking care of myself, maintain contact with family and friends, administration).
It is a rotten disease but life is still good to me.
I wish you all the best!
Elisabeth, you are fortunate in believing that life is still good to you and keeping an optimistic outlook. That's an attitude I try to cultivate in myself, with limited success.
I wish you all good things going forward.
For Peggy, The optimistic outlook came with the years. I've concentrated on that. After so many years of Meniere, mentally I'm no longer as strong as I used to be. But I focus on the things that I like. First I had great difficulty with the fact that I could not work anymore because I see myself as an independent woman who could take care of her own income. Now I'm more or less relieved. I was able to stop the fight and in its place came creativity. It sounds easy... it really isn't, but I just refuse to give up.
You're still in the middle of uncertainty and I wish you much strength.
I suppose I'm lucky that Meniere's found me later than it did you... I've had it since I was 42, nearly 11 years ago. And you are right -- I'm in the midst of the uncertainty. There are days when I struggle to keep my head above water.
This morning I was sitting on our deck with my cup of decaf tea, crying because I am so upset that we have to give up our lovely house and move somewhere less costly. And I've spent a good part of the past six months struggling to come to terms with the idea that I might never have another full-time job.
These developments are so shocking to someone who, like you Elisabeth, was very much invested in the idea of being an independent woman who could take care of herself and earn her own money. I hope I can stop fighting it soon and move on to the next phase, whatever that is.
I wish we could form a Meniere's support group that was in the same city and could hold meetings. But since we can't, it's good to know there are people like the ones on this blog out there.
I'm glad I have bilateral Meniere's. I lucked out though, my rotational vertigo in the left ear is opposite the right. I still feel swelling pressure, ringing, and pain in both ears. My attacks come when one ear is feeling worse than the other. I'm only worried about the later years and the deafness that may come with. For now I try to enjoy my 'good days' to their fullest!
Pffff...Peggy, it is hard. I recognize it all what you write. I hope that you have support in your surroundings. My family did (and does not) and so I was forced to get up - sometimes literally from the street -and get going again. I've always avoided contact with fellow sufferers because people talked as if they were a victim and that didn't made me stronger. This blog is refreshing!
It is very good to talk about problems and grief and next to that also look for alternatives and solutions, otherwise it leads nowhere.
I have read books about how to deal with a chronic illness and that has helped me, so are relaxation exercises. If you think you are going down under in thoughts that lead nowhere you can do a simple and a little bit silly counting exercise.
Count from 1 to 10 but once you notice that a thought comes through start again. Do not get irritated just start again... keep trying until you reach 10 without additional thoughts ... and now from 10 back to 1.
I did this exercise anywhere, in the shower, at bedtime, in the supermarket, in the train. It doesn't take the Meniere away but it does give you a break. Hope this helps a bit.
I started watching your blog lately. I have been diagnosed with Meniere's disease in August 2009. I was 39 back then. My mother also had this when she was 64.
She is now 74 and kept the disease under control with a medication called beta-histamine. She lives outside US.
I live in the US and to my surprise beta histamine is not prescribed here in the US for Meniere's. I was given water pill and did not see any effect of it.
In general I am able to work without any problem. My blood pressure is a bit higher, I get small spells, get headaches...it's tough but I still can survive.
However as I am getting getting older I find it difficult to fight with this disease.
I wish you good luck...your blog has been a great source of information for me.
Peggy,
Sorry it took me awhile been having cluster attacks ugh... I went bi-lateral after 6 years.My DR said more than likely I would though he never gave a reason why & I never questioned him as I thought it was just common occurrence. I'm like you I'll just endure it on this side NO surgeries on my "good" ear. I'd like to keep hearing what little I can.
Elisabeth, I'll second your compliment. This blog is refreshing. I love it. I've grown quite accustomed in reading it every day I'm sitting upright. I've found support in all the entries on here.
Great job David I think you've got an excellent batch of followers.
I love this blog and all of the wonderful followers, there is strength in numbers. The best information and knowledge comes from people who live with this everyday. The doctors just generalize and give you text book answers. My doctor cannot understand why we do all this search for information on line and question everything he does and prescribes. Thank you everyone and I hope everyone has wonderful and safe summer. Take care David.
Thanks everybody for all the great information and comments, I really appreciate it!
David
Elisabeth, I've been trying to do something similar when things become overwhelming... I try to take slow, deep breaths while thinking thoughts from a guided meditation CD I have, or I sing scales and arpeggios. Sometimes I will simply sit with my legs crossed and eyes shut, envisioning more peaceful realities.
I've had two episodes of vertigo this week. Not very long or extreme, but still recognizable as vertigo, not simple dizziness. I called my doctor, who wants me to see if I have any more vertigo this week, then make an appointment to have the hearing in my "good" ear tested and get an ENG to see if my nystagmus has increased. I would guess that it has -- my vision has also been more blurred.
Trying to stay focused and calm.
Sherry, you are right that it's very helpful to look for information from people who live with it, and from other doctors online. My ear/nose/throat doctor has been very accepting of ideas I've brought to her from my own research, and in fact she changed my surgery slightly based on some research I had found from another specialist online. For me, if a doctor is closed off to other thoughts, particularly from other doctors, they aren't necessarily the doctors I want supervising my care.
Lauri - What type of surgery did you have?
Hi Anne~
I had the Sac Decompression surgery on my left ear. My understanding is it has a 65-70% chance of working.
In my case it did work. It stopped the rotational vertigo. It doesn't stop any other symptoms such as: Tinnitus, ear pressure-pain feeling, brain fog, loss of hearing/hearing distortion, or disequilibrium though, But I can't begin to describe how WONDERFUL it was to go from almost daily vertigo attacks..to none. :)
That lasted from January until last month, and now vertigo has returned...however it seems to be coming from my right ear (previously "good" ear), not the one I had surgery on.
I recommend the surgery as it is less invasive than the other surgeries, and in my case it did help the vertigo. I didn't have to worry about hearing loss from the surgery as I had already lost the hearing in that ear.
Now I'm just praying that I haven't gone Bi-lateral.
That's kind of good to know, Lauri. I've been terrified lately and am being tested this week to see if my right ear is now heading into Meniere's territory, so if the answer is "yes," it's good to know there are other options besides the labyrinthectomy I had last year on my left ear.
Peggy..our Menieres seems to be on the same path lately, as I will also be in (Wed. actually) to have the ears re-tested.
Good Luck to us both!
I'll post when I know something, and get as many answers as I can while I'm there as to the options possible for Bi-lateral people.
I know you will do the same.
Do any of you wear hearing aids to help with the hearing loss?
Back in April, I think, there was a thread on this blog about hearing loss and regrets. If you look for that, you might see a bunch of posts about hearing aids. They seem to help some people but not others.
Peggy,
I'm bilateral. You might try a Neurotologist if you haven't yet. I would be conservative and think/research before doing anything drastic. I'm also on steroids now which seem to be helping even though they never did for the last 2 decades.
Try a listening device with piano music. I have ear phones that have volume dials for each ear. That helps me cope when it's really bad. I am now even able to read a book with piano in the background to drown out the tinnitus.
I do keep my ears sedated everyday. That's what the drugs are for.
I'M WITH YOU TOO and NEVER GIVE UP!!! Remember that everyday can bring something new and better. We have to take it one day at a time. Keep surrounded by positive people and loving pets.
I'm not sure if my ENT is a neurotologist, but she is a neuro-surgeon, so perhaps she does fall into that category? If in fact I'm going bilateral I will pursue an extremely conservative protocol. I don't want to lose the hearing in that ear any faster than I have to, and I don't want to damage the vestibular nerve, since it's the only one I've got now.
And I think heaven for my three loving cats every day. They keep me sane, even when my husband doesn't. ;-)
(For the record, my husband has been wonderful about Meniere's, but animals have the added benefit of being totally uncritical and adoring. You have to love that...)
hello peggy
dont wanna put you on a downer, but have you ever checked allergies regarding pets, as i came back positive to horses, cats and dogs.
regards
ali
Oh, I know I'm allergic to cats, but neither my allergist nor my ENT, who were in the same practice and talked to each other about my case, were concerned about that.
I don't ordinarily have much of a reaction to them, unless I happen to get scratched. Even then, it just gets a little red and itchy, then subsides quickly.
To date, none of my Meniere's attacks seem to have been triggered by anything to do with the cats. In fact, all of my attacks have happened when I was outside the home. A couple of them began at work and struck hard while I was in transit to my house. Another was at a friend's house where there are no pets. Another was at my mother's house... no rhyme or reason that I can see, at least not to do with animals. Thank goodness.
Since the failure of the Sac operation in January, I have felt more going on in the right (good) ear, as well as the compromised one. They just retested, and of course the BAD ear shows it's just as bad as before the operation, but the good ear only shows slight hearing fluctuation, and the caloric testing doesn't support Bilateral for that ear yet.
I say "yet" because I am so aware of the feelings of pressure, pain, the 'warning' tones from that ear..that I can't comfortably rule out that it's effected but just not showing enough damage yet to record on the VNG.
I am confused by the changes in vertigo direction.
I need help/info from you all!!
1. Has anyone unilateral ever experienced the vertigo spinning in the opposite direction from what it usually does?
2. Has anyone Bilateral experienced spinning one direction from one ear and the other direction if it's the other ear causing the vertigo??
My Doctor is pushing for me to have Gentamicin done..but I'm not making that drastic decision if I think the other ear can give up the ghost.
I need more info to decide.
Thanks everybody!
Lauri
Hi Lauri,
the spinning I have had is always going in the same direction. That is interesting because I never really thought about the direction of the spinning if you were bilateral.
Lets hope that the meniere's doesn't go into the other ear.
David
Thank David!
Not to put down the Dr.'s..but we are the only ones who REALLY know what Menieres feels like. The symptoms & opposite direction vertigo worry me. After all..it's not as if we are strangers to what the ears feel like with Menieres.
At this point I need to hear from others with Menieres, and see if anyone else has experienced the opposite direction vertigo.
Especially if they are Bilateral.
I've heard that if one ear is already really bad (which my left is) that early detection of Menieres in the other ear may not show up on the VNG until it has become more damaged by the disease. If that is the case, then I will NOT have Gentamicin done.
I need to make a decision soon, and I am very stressed about it. Stress and Menieres..not a good mix.
Hope yours is under control lately!
Thank you~
hello lauri and peggy
lauri i would not have the gents until you have seriously taken allergies/intolerences, sinus control and tried the grommit/stelroid. i used to be billateral then one day i perferated my right ear and had a huge infection which took alot of gunk out, since then my right ear has found a good medium.
peggy i can not believe your doctors have tested you positive for cat allergy and then see no relation between cat allrgy and your menieres. living with cat hair and saliva slowly will play tricks with your body hence you do not see the correlation.
love
ali
Lauri, my spinning has only been in one direction, too, and I'm unilateral. (Although, come to think of it, many of my attacks were more like jumping up and down and rocking, rather than spinning.)
I've also been worried about the fact that I'm now getting tinnitus in the right ear (until now, the "good" ear) and the tinnitus tones are very different from ear to ear. I imagine it's not impossible for the vertigo direction to change from ear to ear, although I could be totally wrong.
If you still have a good amount of hearing in the ear that's just starting to be affected, I would NOT use the gentamicin in that ear, because it will drag your hearing down. Or did the doctor mean in the ear where you had the surgery? If so, I would do it. I wouldn't do it if you had already destroyed the other vestibular nerve, but in this case it could buy you some time without symptoms.
I basically DID do that, although the tinnitus didn't go to the good ear until after my labyrinthectomy, and the doctor keeps saying very firmly that I'm absolutely NOT going bilateral. I often wonder if she's just saying that to keep up my spirits, because I don't think she has any way of really knowing.
Hi Peggy~
They mean to put the Gent in the bad ear.
They are not ruling out that the good ear may have some Menieres involvement at this time, they actually said at one point that it seemed bilateral, and then changed their minds. That was before the VNG test.
No question that when I get full feeling & warning tones from the right 'good' ear I have opposite direction vertigo. I spin to the left. For three years I have spun to the right with Menieres from the bad left ear...and now this new stuff.
Interesting that it began AFTER the sac surgery.
Prudence would dictate that with the good ear behaving like this Gent should not be done, but the vertigo has been sooo bad.
I now get about 2 days of DECENT functionality a week. Not enough!
I'm afraid if I Gent the bad ear that Murphy's Law will kick in..the right ear will go...and I will be a worse mess than I am now. Not to mention the Gent recovery prob's that many have had.
I'm scared and having a super tough time deciding this. It might make a huge difference for me..or it could create a nightmare beyond belief.
I wish I could just wake up tomorrow and it would all be gone :) (don't we all)
That's why I really need to know if anyone else has the opposite direction vertigo..and if it only happened due to going bilateral.
That could really decide this for me.
Appreciate your help!
Hi Ali~
I'm allergic to steroids, so they are out, although I would not have hesitated to try them otherwise. They have never done allergy testing..but when my symptoms of Menieres first began, they presented very much like a viral issue. I told the DR.'s that. They just ignore you.
I really wish the ENT would at least try the Acyclovir. Couldn't hurt.
I will discuss allergy testing with him next time.
Thanks Ali!
Lauri - ah, that explains something. I thought I remembered that you had said you WERE bilateral at one point, but then you said you weren't, and I was confused.
In this case, with signs pointing toward your right ear getting involved and an earlier diagnosis saying you were bilateral, I think I'd put off the gentamicin, too. It's a huge risk, if the right ear goes the same way, and you do have enough symptoms that I'd be scared.
Sorry I can't give you any information about spinning the other way. :(
For a while I thought I might be going bilateral. I even got dizzy (not vertigo ) more then once when I didn't feel my normal signes that usually tell me I'm
about to have an episode. It was so strange. I went to my Dr. to do a hearing test and everything is still normal on my good ear. What I think happined is that I don't have terrible allergies, but I do get them. The problem is that I get them in my ears. So I think there might have been excess fluid in both ears which caused the similar symptoms I have with Meniere's. I am going to see an allergist and see about getting allergy shots. Even though I think that the shunt surgery has worked (for the most part) I want to rule everything out before I'm forced to make the decision of getting the gent shots, which will probably be inevitable sometime during my lifetime, since I'm only 27. I'm glad I had the surgery, so for now, I'm just thinking positive and praying i go into a remission of some sort, and that my allergies don't disturb what I've got going on for now.
hello tara
"I want to rule everything out before I'm forced to make the decision of getting the gent shots."
that statement of yours is exactly what its about, and the beauty of this blog is that you have access to most/all things you should rule out before you go for the big/dangerous ops.
regards
ali
Ok Guys~
For those of you with right ear Menieres..do you vertigo spin to the left?
Do those with left ear MD spin to the right?
ALWAYS THE SAME?
Thanks again! I'm trying to figure this out.
Lauri
I have left-ear Meniere's and don't really "spin" at all... if anything, I'd say my vertigo takes the form of jumping up and down violently. I know... it's bizarre. But I really couldn't say I spin left OR right. Sorry... I hope that doesn't just confuse matters. :(
I have had MD in the R ear since I was 20. After 16 years of being unilateral, I had a gentamicin perfusion which helped the vertigo, but destroyed my hearing.
Now, after 24 years of MD, I am experiencing really strong tinnitus and fullness in my L ear. I had an unpleasant night last night, with vertigo and nausea lasting for hours. I cannot sleep as everything is just moving around, so I end up really tired and depressed as well.
I am interested to hear what happens when you only have one nerve left and it starts to play up.
I was also very interested to hear about the allergy comment, as I have had increased sinus pain and problems since the L ear started, and the doctors in my area have commented that allergies are much worse at the moment.
Having said that, allergy was ruled out in my case some years ago.
Oh, I forgot to ask, I notice some of you mentioning that you keep your ear sedated. How do you do this? What medication do you take?
My rotational spinning has been to the right when I have them. I don't get a lot of rotational spinning, mine is more up and down, back and forth, and the feeling that nothing is still at all - it is like the environment is uncontrollably and relentlessly moving every which way continuously. It is very tiring.
Then there are the other things like the floor moving when I walk, feeling like I am standing at an angle when I am upright, feeling that I am constantly rolling off the bed when I am lying still...and this is without any vertigo!
Hi Jenny~
I use valium to keep the ear sedated.
It's the ONLY thing that's worked.
I didn't used to take it daily, but the vertigo and other false motion has become so bad, that now I have to.
I used to worry about addiction..but I low dose it daily, and I figure that between vertigo or POSSIBLE addiction..I'll take the addiction. I will say though, that I have gone off and on the valium over the last 3 years, and shown no signs of addiction.
Your very familiar symptoms you describe are a constant for me now, in between the actual vertigo attacks.
I can sympathize with you. It's awful.
Thanks Lauri. I take Valium, but only for a few days as I am worried about addiction, and also building up a tolerance. For about five years cinnarizine worked wonders for me, but then I built up a tolerance to it, and the vertigo returned.
It is just a constant battle for MD sufferers, isn't it? How to try to control the vertigo and dizziness. Thank goodness there are some days better than others!
I have read all of the blogs up to December 4, 2011. I am happy to see a place that is much more positive and less scary. I have had Menieres for 6 years in my right ear. I am experiencing attacks once a week, with imbalance and a feel of "offness" inbetween alot of the time, but not everyday. Six years ago at the onset of my MD I had a 3 hour long vertigo and puking session that we then decided to go tothe emergency room. Following that, it was diagnosed with the usual tests. I went a couple of years with little to no sympoms somewhere in year 3 and 4.
I just last week had another severes vertigo attack that the usual vallium and anti nausea pills did not even help it at all. Usually they do a great job pretty quickly. It reminded me of the very first attack I had 6 years ago and am wondering if this coud indicate the onset of MD in my good ear. I have also noticed ringing in that ear and I can't lay on that side as my safe side all the time anymore as I feel the world move as I turn back over. So this worries me. Keep in mind that I have had other vertigo attacks off and on in clusters at other times in the last 6 years, but the medicines always have helped me through. Could this indicate that is has gone to the good ear? Also, losing my hearing, tinnitus, and feeling fullness and off balance I can deal with, but what is expected if both ears are affected regarding balance issues? Is this just balance issues, or constant vertigo? So worried, I just need to have an idea as to what could be the worst case if it went to destroy both ears. Thanks for listening!
Stacey
Stacey, it seems to me that the symptoms you are having could be due to your Meniere's coming out of a minor remission. It changes from time to time, regardless of treatment, and the problems in your bad could get better or worse without anything happening to your good ear. But if I were you, I think I'd get the "good" ear tested to see if there's any hearing loss or other changes.
Hope you feel better and get some good news soon.
Peggy,
Thank you soooo much for responding to me. This is the first time I have ever posted anything on anything so it was nice to hear back.
I had the best nights sleep I have had in months last night after my husband thought he had a revelation about the pressure inside our house. He opened 3 to 4 windows and we felt a dramatic swoop of air through the house. We live in the north, so it is very cold inside our home now, but I did have the best feeling day and night I have had in a really long time. Now I do realize that this disease has proven not much rhyme or reason, but we will try anything!
I have also started the regime of vitamins on Johns webpage. We will see if this has an affect. I still am very interested to know what the end result is if both ears become affected and the loss of balance issues become prominent. Again, does this mean certain vertigo, of simply balance?
Thank you again for your well wishes and I pray for all who have this mischevious disease.
Stacey
hello stacey
you mention you live somehwere very cold, be careful of heating (radiators) they bleed the room of oxygen.
for me a room with no air is always a trigger. if, were u live is really that cold and u need heating. buy a humidfier to bring some oxygen to the room. or have loads of bowls of water.
for me fresh air is a very important part of my menieres control.
regards
ali
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