I receive a lot of comments from folks about whether they in fact have Meniere’s disease or not. Their doctor may have diagnosed them with it but then again they still aren’t sure. And that makes sense because meniere’s is a strange disorder that is hard to make sense of. I received a comment the other day regarding meniere’s and Vestibular Neuritis.
Anonymous’ wife after years of living with Meniere’s disease had the laby surgery. It went well and with therapy and exercise she had a good recovery. After a year of no meniere’s she started to have attacks again.
Here is the rest of the comment…
“We know it is not positional vertigo and it's not Meniere's in her good ear, but we are stumped trying to figure out what is going on. The doctor first thought perhaps she had Vestibular Neuritis, but that should have resolved by now. Now his is thinking she may be among the <1% of people that develop a vestibular neuroma on the nerve stump following labyrinthectomy, but that is very rare and there is no way to test for it. I know we will get her through this and will be back to feeling great again someday, but it's been hard for her to deal with after knowing what it's like to feel good again. Does anyone out there know of someone with a similar experience?”
I would have hated to go through that type of surgery and then a year later start to have the attacks again. But you never know with meniere’s. It is also kind of scary that she might have developed a vestibular neuroma after having the laby surgery and not be able to find out for sure.
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Sunday, January 8, 2012
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5 comments:
How would someone know that its not Meniere in his good ear?
My question, just like above is how do they know it's not in the good ear???.....I gotta ask, as well,..my ENT dr. said there is really NO way to know if Meniere's has effected a good ear. Not even the caloric testings can always show if an 'ear' is effected. I'm really wondering how her Dr. knows that it's not in the good ear, too???? I'm about to undergo another set of tests and have to make some big decisions on next form of treatment based on the fact that the dr. believes it has moved into my 'good' ear and has told me u really cannot know for sure.
That's a good question. In my case I had substanial hearing loss in my left ear so the doctor determined that was the ear with the meniere's.
I don't know if there is another way to determine which ear has it or not. I will have to do a little research.
DAvid
My ENT did a test that she said confirmed pretty conclusively that I had Meniere's. It involved putting what seemed like a very thin fiber optic cable into the affected ear until it touched the eardrum, but I have no idea what it was measuring.
Having had Menieres since the age of 19 (Im now 58) I was always aware of which ear that was affected.. there was a sense of fullness and pressure in that ear from just before my first attack, my hearing loss is only in that ear and I developed tinnitus just in that ear..
Im so sorry to see that it has returned after a Labrinthectomy... I had this operation in 1998 and it has given me my life back .. I had become totally deaf in the affected ear and my attacks were extreme vertigo/vomiting lasting many hours and I was having drop attacks with no warning.. I spent a week in hospital after the op I had check ups but no therapy.. and I have nothing but praise for this op ..I wish I could have had it done years ago ..I have never heard of Menieres returning after this op but if it was something such as the neuroma would this not be visible on an MRI scan? I do hope you get some answers and solutions very soon...
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