Sunday, February 26, 2012

Meniere’s disease and Marijuana

Legal marijuana and its health benefits have been controversial to say the least! There are some people who have found it to be quite beneficial while others don’t agree. As of right now there are 16 states and the District of Columbia that have some sort of legalized marijuana, most of the time it is used for reducing pain in cancer patients. Have you ever wonder if anyone has used it to help with Meniere’s disease?


I received a detailed comment from someone this week who had indeed smoked marijuana to find relief from the vertigo, tinnitus and the general agony that goes with Meniere’s.

Here is some of that comment…

Times are from first puff.



TIME EFFECT

0:41 Feel initial effect

01:27 Pressure subsiding and spreading

02:53 Noticeable pressure relief

05:30 Feeling better

06.18 Hungry, nausea subsiding

06:30 Major vertigo relief, smiling

07:02 Overall sense of relief

08.26 Body relaxing

09:16 Full blown attack averted

12:15 I can function, day is saved

19.50 Best results from any medication I have tried



Since medicinal marijuana is limited to a small percentage of states this option wouldn’t be open to everyone and you certainly don’t want to break the law either but I thought that it is important to keep an open mind about all things that may help with Meniere’s disease.

For more information regarding medical marijuana also referred to as its pharmacy name Marinol, check out this site from the Department of Justice.

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Thanks

29 comments:

  1. I have to disagree with him,David. I tried it myself years ago & it only made my symptoms worse the vertigo increased,the pressure was overwhelming the only relief it provided was the nausea subsided & I did get hungry. Every attack I had the following week was severely worse. In my experience its not something that would help our illness.

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  2. The effects sound most impressive..to stop the attack turning into a full blown attack is something that all sufferers are seeking.. Here in the UK its illegal but how wonderful it would be to have some research carried out to see if it could be turned into a helpful drug for menieres.

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  3. Perhaps it's like every other Meniere's treatment, in that it works for some, but not for others?

    Unfortunately, smoking anything isn't a good idea for me, since I have asthma, and I don't think NJ is one of the legal states (I could be wrong about that, though).

    But if it works for people in the states that allow it, GO for it!

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  4. i really cant see weed being of any use, even if it was there is also the other effects like paranoia, laziness, depression, the list could go on.
    on the subject of illegal drugs, i bet one drug that could work would be opium, purely based on the calming effects.
    regards
    ali

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  5. Hello all,

    I just recently came across this blog, but I have been diagnosed with Meniere's disease since I was 12. I am 22 now.

    I will post my story about how I've lived with it another time, but I have had to get the endolymphatic mastid shunt back in 09 because I simply wasn't able to do anything at all.

    Since the surgery I haven't had any attacks but I recently had my first drop attack a few months ago and that was quite frightening.

    Since I was 13 I was on all kinds of medications, mainly suppositories because I couldn't keep anything down. Valium, xanax, phenergan, triameterene (diuretic). I remember now having much relief from those medications, except for being sleepy, which I hate.

    Now it's kinda' hard to say weather or not marijuana has directly helped my symptoms. I started smoking about a year ago and I did have my surgery in 09 but, I do suffer from on and off again nausea throughout the day, and when the weather changes and brings a lot of pressure, oh boy.

    Another thing I noticed, the right ear is the one with the shunt, when the weather is crazy, it seems like even if I slightly run my hand by that ear, it is so sensitive and it makes me instantly nauseas!

    I do not take any of those other medications anymore, I haven't since the surgery. I just use medicinal marijuana and I would definately have to say it helps me live a stress free meniere's life.

    Now let's just hope I don't go bilateral with it!

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  6. Hi Amy,
    I hope you don't go bilateral also! Your comment made me think of time that I once considered the shunt surgery. My next post will be about it.
    thanks for commenting
    David

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  7. Amy,

    I hope you have been allergy tested ....12 is so young. I was 17 when I began to have problems and allergies were not addressed until now... I'm a female in my 40s with bilateral disease. I will never know if testing earlier would have helped.

    I have really wondered what it would be like to ingest the marijuana...but it's illegal here where I reside so I guess I'll just keep wondering....

    I too, went for about 4 years without drugs after EMS surgery but I was bilateral so had to take drugs for the "good" ear as it progressed.

    I do wish you all the best!! I just recently started sharing on this blog too.

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    Replies
    1. Hi all,

      My husband age 30 was diagnosed with Mineare's disease about 2 months ago. Since then he has limited sodium and cut out caffeine and alcohol. This past week was a tough one, had a family party and a family outing at the amusement park and during both my husband had attacks that lasted hours and almost a full day. My hubby is already deaf in one ear from a childhood illness, so we are really trying to limit the attacks in hopes of saving his good ear indefinately or as long as possible. I have been doing a ton of research and while the doctors give a lot of "try this/ try that" I am determined to find something that works in subsiding the attacks. I have put him on an all natural diet with natural diuretics for a month (no easy task!!!) If this doesn't work, our next step is hopefully, MMJ. My husband has never smoked before and certainly isn't an advocate for any street drug use, but I say "lets try anything before surgery".
      This entire experience has been disheartening for our family as I am sure it is for every one who is affected by this disease. If anyone has any input we would greatly appreciate it!
      Thanks

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    2. Hi all,

      My husband age 30 was diagnosed with Mineare's disease about 2 months ago. Since then he has limited sodium and cut out caffeine and alcohol. This past week was a tough one, had a family party and a family outing at the amusement park and during both my husband had attacks that lasted hours and almost a full day. My hubby is already deaf in one ear from a childhood illness, so we are really trying to limit the attacks in hopes of saving his good ear indefinately or as long as possible. I have been doing a ton of research and while the doctors give a lot of "try this/ try that" I am determined to find something that works in subsiding the attacks. I have put him on an all natural diet with natural diuretics for a month (no easy task!!!) If this doesn't work, our next step is hopefully, MMJ. My husband has never smoked before and certainly isn't an advocate for any street drug use, but I say "lets try anything before surgery".
      This entire experience has been disheartening for our family as I am sure it is for every one who is affected by this disease. If anyone has any input we would greatly appreciate it!
      Thanks

      Delete
    3. Hi llmyk,
      What a very challenging experience you are enduring-my sympathies go out to you. My husband has had meniere's for over 15 years.You will make it through this.
      Here are a few things that have helped us:
      Low sodium diet (2000-4000 mg, 1000-is too low)
      VALIUM (2.5-5 mg at the intital onset of an attack (often aborts the attack but makes the person very tired)

      Most MDs say diuretics help

      As a last resort,low dose gentamycin can help vertigo signifantly but has other serious side effects. We have not considered this yet.

      Other things that seem to help:
      Acupuncture (done by a very experienced
      licensed therapist-ours trained in China)

      Things that did not help:
      Stunt surgery (still had symptoms post-op)
      Allery treatment ( immunotherapy shots, antihistamines)

      Things that may be helpfull that we have not tried:

      Intratympanic steroid injections (seems to be the emergent treatment choice)
      Menniets device (very controversial but we woulod try it before gentomycin)
      Medical marijuana

      I will keep you posted if we have success with any of these. So far, the valium has been the most helpful with an acute attack.

      Best regards,
      Renee




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    4. Intratympanic injection did nothing but hurt. A two week corse of Prednisone helped restore hearing but fades when the drug tapers off.

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    5. That makes me think your problem is largely due to inflammation, which is what Prednisone addresses. I wonder if a general anti-inflammatory, like Wobenzyme, would help? My nutritionist also told me that adding a small amount of organic apple cider vinegar to my drinking water would help reduce systemic inflammation. The taste takes some getting used to, but I'm fine with it now.

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    6. Thank you Peggy, MD for me is definitely related to inflammation. Ear doc says not all MD cases respond to prednisone by improved hearing. Will check out the apple cider.

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    7. Look for Wobenzymes, too. I take three in the morning and three at night to help keep inflammation down. They are kind of pricey, but if they help, I think it's worth it.

      Diet is a huge part of avoiding inflammation, too. I'm trying to minimize carbs and processed sugars, limit processed foods in general, and increase my intake of protein, vegetables and fiber. I feel better all over.

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    8. Found a source nearby. Thank you Peggy. I am going to try it.

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  8. hello llymk
    there is alot of options before weed!
    regards
    ali

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  9. hello
    here goes
    i amoked some pure weed, i gotta say it does give you a sharpness and kinda takes ur balance issues away.
    i smoked it in a pipe and very little, done it 3 days in a row.
    regards
    ali

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    Replies
    1. Ali, did it help with the tinnitus?

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  10. Going back to your comment about opium, that's not a good idea. Marijuana can be habit forming, but opium is addictive right out the gate. And the effects plateau, leaving the user taking more and more in order to get the same effects a smaller amount provided the first time.

    Intrigued to see you decided to try weed after all, Ali, although it doesn't sound like it did much for your Meniere's. I'll be curious to see what others think about this, if they try it.

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  11. Hello
    After trying weed, I came to the conclusion it is an utter disaster for menieres.
    Here is why:
    Initially you smoke it, there is a feeling you have control and sharpness, your whole balance mechanism seems to be in unison.
    But then there is the day after, like there is with alcohol (hangover and heavy head, which are 2 real bad triggers for menieres). Dilemma is that you need more to get back the sharpness. Here lies the problem, it is an addiction and over time you will end up smoking more and more. Then the negative sides will also become reality like idleness and paranoia.
    In reference to opium Peggy, in Iran the majority of old are on opium, they do it instead of taking the white pharmaceutical painkillers, which all derive from opium anyway. It’s sometimes how you label something.
    But you are right the addiction is very dangerous territory, but addiction from my experience is down to the personality rather then the substance.
    Regards
    Ali

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  12. Ah, I think I was misled by the word "opium," because I'm used to thinking of "opioids" in medical applications. My mistake... sorry. But I think the concerns about addiction remain the same. Tricky stuff.

    But saying it's down to the personality is oversimplifying. There are many drugs that are addictive regardless of who is taking them. Yes, there are addictive personalities, but there are substances that will be a huge problem for any personality, I believe.

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  13. Diagnosed 3 years ago, rapid progression into bilateral and I have had countless meds and procedures with minimal relief. Marijuana has been a literal life saver! and to clue you in 1. it is in fact legal in NJ 2. its does not cause some of the mythical effects stated on previous posts 3. There are no physically addicting properties in mj as apposed to all the benzodiazipines prescribed to treat symptoms. Educate yourself and make an informed decision before you persecute others that have found relief! Ex wife of former chancelor of Vanderbuilt University (Constance Gee) a very highly respected member of society has become a medical mj advocate as she suffers from menieres as well and has found relief with medical mj use.

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  14. hello anon
    for every respected member of society that advocates weed, i will give you 100 respected people who are against it. i am very happy that you are having such great results from smoking weed in reference to your menieres symptoms.
    i can honestly say i gave weed a good try, but for me the problem was the day after were you would get a heavy head, which in turn would make me off balance. please expand your post to the exact type of weed you are smoking and exactly how it is helping you.
    regards
    ali

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  15. I've been using marijuana to help alleviate meniere's symptoms for about 4 years. Before being prescribed, I had fairly regular attacks (about 1 every month or so). Since I've started smoking I've only had 4 attacks (nothing in the past 2 years). I've also watched my sodium intake and try to stay in shape.

    Marijuana doesn't 'take away' the tinnitus...but it makes me not 'notice' it...or not care. The ringing in my ear doesn't stand a chance at keeping me up at night after I smoke. And when I feel like I'm having an attack...marijuana actually levels me out and I too avoid full blown attacks...For me, the best thing I can try to do when having an attack is get to sleep...If I can get some smoke into me (in between vomiting), I have a much higher chance of falling asleep and riding out the worst of it.

    If you haven't tried it yet...please do. It might not work for everyone, but we all know how shitty this condition can be...Marijuana has been a god send for the symptoms AND the depression/anxiety that the tinnitus brings about.

    Stay positive, try new things, and find what works for you.

    J.S (Univ. Professor/Musician)

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  16. I've been using marijuana to help alleviate meniere's symptoms for about 4 years. Before being prescribed, I had fairly regular attacks (about 1 every month or so). Since I've started smoking I've only had 4 attacks (nothing in the past 2 years). I've also watched my sodium intake and try to stay in shape.

    Marijuana doesn't 'take away' the tinnitus...but it makes me not 'notice' it...or not care. The ringing in my ear doesn't stand a chance at keeping me up at night after I smoke. And when I feel like I'm having an attack...marijuana actually levels me out and I too avoid full blown attacks...For me, the best thing I can try to do when having an attack is get to sleep...If I can get some smoke into me (in between vomiting), I have a much higher chance of falling asleep and riding out the worst of it.

    If you haven't tried it yet...please do. It might not work for everyone, but we all know how shitty this condition can be...Marijuana has been a god send for the symptoms AND the depression/anxiety that the tinnitus brings about.

    Stay positive, try new things, and find what works for you.

    J.S (Univ. Professor/Musician)

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  17. I'm glad to see that marijuana has helped with your tinnitus, like most treatments what works for one person doesn't work for another. I definitely agree that you should keep your mind open and try new things.
    thanks for commenting
    David

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  18. I've read that some do not wish to try marijuana because the must smoke it. Being from a state where we not only have medical marijauna, we also just leagalized it for recreational use. Therefore, I've learned some things about this often misunderstood drug.
    Primarialy; you do not need to smoke marijuana in order to receive it's benefits. Most legal medical marijuana outlets carry "edibles" where the drug is infused into such things as cookies and even suckers. There are also capsules/pills and liquids you can administer with a dropper directly into your mouth.
    As so many have said; to try anything that works, might I sugges5t that you go on line and visit a state (CO and WA) where recreational marijauna is legal and give it a try.
    My personal experience has been positive. I use a combination of the previously mentioned delivery methods and for me, it works. Simply put; when the drug enters my system, my symptoms at least decrease and sometimes, go away. The problem I experience is that I work and cannot be "high" whilst doing that. Therefore, edibles work best for me as the "high" is not as pronounced as is smoking.
    Subsequently, I function best after eating a "cookie" as opposed to smoking the product.
    Personal opininions aside; my recommendation to sufferers would be to give it a try and see how this drug interacts with your personal version of Minears.

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  19. I've read that some do not wish to try marijuana because the must smoke it. Being from a state where we not only have medical marijauna, we also just leagalized it for recreational use. Therefore, I've learned some things about this often misunderstood drug.
    Primarialy; you do not need to smoke marijuana in order to receive it's benefits. Most legal medical marijuana outlets carry "edibles" where the drug is infused into such things as cookies and even suckers. There are also capsules/pills and liquids you can administer with a dropper directly into your mouth.
    As so many have said; to try anything that works, might I sugges5t that you go on line and visit a state (CO and WA) where recreational marijauna is legal and give it a try.
    My personal experience has been positive. I use a combination of the previously mentioned delivery methods and for me, it works. Simply put; when the drug enters my system, my symptoms at least decrease and sometimes, go away. The problem I experience is that I work and cannot be "high" whilst doing that. Therefore, edibles work best for me as the "high" is not as pronounced as is smoking.
    Subsequently, I function best after eating a "cookie" as opposed to smoking the product.
    Personal opininions aside; my recommendation to sufferers would be to give it a try and see how this drug interacts with your personal version of Minears.

    ReplyDelete
  20. i have been suffering from mieneres for about 10 years. not only did this disease take my career but it has my life. unknowingly, the attacks are but a paranoid surprise. marijuana has definitely helped me. I was prescribed valium but marijuana has almost the same effect so I chose the natural remedy from mother earth. at this point I'm open to any treatment as long as i'm not in a blackout. the biggest problem is also finding and talking with someone with the same disease but i can't find another person at this time; which is also great news. I'm sorry to you people who suffer along side life itself. best wishes and good luck, stay positive. at least marijuana will bring a smile to you and those around you.

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