Sunday, May 27, 2012

Lermoyez and Meniere’s disease

After writing this blog for 3 and a half years I have found out quite a bit about Meniere’s disease, vertigo and tinnitus. This past week I received a comment from someone about a disorder that I hadn’t heard about before called lermoyez which have similarities to Meniere’s disease.

Here is part of the comment from Sam…

First of all, I don't think I have Meniere, well, my MD thinks I don't
He says that I have some sort of yeah other branch? I don't know
How to translate it, but according to him I have Lermoyez, it's somewhat
The same as Meniere but it has like a different process, I kind of forgot
What it was exactly but I think it had something to do with the hearing
Loss building up prior to a vertigo attack and "restoring" afterwards.

According to Dictionary dot com lermoyez syndrome is “A hearing disorder in which the degree of deafness increases until an attack of dizziness occurs, after which hearing improves. Also called labyrinthine angiospasmInterestingly enough the doctor who it was named after Marcel Lermoyez was only the second otologist named to the Academy of Medicine with the first being Prosper Meniere (according to wikipedia)

It seems rather strange that after a vertigo attack your hearing would improve but I have read that this disorder doesn’t have an effect of the endolymphatic hydrops unlike Meniere’s disease.

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Sunday, May 20, 2012

NUCCA and Meniere’s Disease

When it comes to finding relief from Meniere’s disease it is always good to keep an open mind about various treatments. I have written in the past about the typical meds that are prescribed for Meniere’s, and some of the typical procedures such as the gent injections and the various types of surgeries. I have received comments about NUCCA (National Upper Cervical Chiropractor Association) wondering if it would help with Meniere’s.

Here is a comment from Ali …

Seems they have broken through with some new medicines for tinnitus. A lot of papers in England are talking about it.
Does anyone know anything about neck and Meniere’s?
I have tried cranial osteopath, which was good. I want to know more about the nucca, it costs £600, before they even know if you’re a candidate for the treatment, i am not willing to spend that much, as only one person on this blog mentioned it. Please give some feedback regarding this type of massage.
Many people think neck misalignment can be a major factor for Meniere’s/migraines as Misalignment will cause the neck muscles to tense and squeeze nerves and blood flow into the head.

There is a NUCCA website that gives a lot of information about this procedure and how it helps with balance and general health. I know that not everyone is a fan of chiropractors but it is still important to learn as much as possible about anything that can help the condition of Meniere’s disease.

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Sunday, May 13, 2012

Long term Meniere’s disease

I remember when I had an attack about a year after I was diagnosed with Meniere’s disease. It was at work and it was particularly bad, so bad in fact that my boss at the time called the ambulance. As I was being loaded in the back of the ambulance I remember thinking it this how it is going to be for the rest of my life, will Meniere’s be with me forever. Well, I still don’t know the answer to that.

Of course things have changed since that ambulance drive, the main one being that I don’t work anymore. And I spend about 90 percent of my time at home so when I get dizzy or light headed I lie down till it passes. This certainly isn’t where I expected to be at the age of 54 but with Meniere’s you have to make the best of the situation.  I have been exercising a little since the beginning of the year and I have been watching my diet as well, overall health certainly helps the situation.

On a positive note I did get my notice of approval from Social security disability, which I am very thankful for. It takes a great weight off my shoulders. All told it took about 2 years from start to finish to get the approval.

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Sunday, May 6, 2012

The salt shaker and Meniere’s

As I am sure everyone knows that salt and Meniere’s disease don’t mix very well. From the very start of my Meniere’s problems I have been told about the connection between the fluid in the inner ears and the challenge that it presents to your balance. As I have written in the past that even with a low sodium diet I still had vertigo episodes, fortunately there are some folks who have had success with a low salt regiment. I received a comment from Liz the other day about just that…

My name is Liz, I am 24. I have been suffering with MD since I was 13 years old for a while no one could diagnose what was going on with me. By the time I was a senior in high school they pegged me with MD. I had a long stretch during college when I did not get one attack. However last year I had my first child. After that I started getting attacks every day. I went to an ear specialist; he put me on triamterene and a low/no sodium diet. Knock on wood I have not had an attack since. The diet is VERY restricting, but it is worth it not to have a disabling vertigo attack. Start looking at all of your labels and try to keep your intake per food item/ ingredient, under 50 mg of sodium.

Liz makes a wonderful point about reading the labels on the food that you eat. You will be surprised at all the sodium that is found in processed foods and it can be a real challenge to stay on a diet that restricts the amount of salt intake. 

I will add that the triamterene hctz which is a diuretic seems to helpful for me.
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