my life and meniere's disease

I can't remember if anyone posted a comment about ...

2010-03-11T19:28:01.308-08:00

I can't remember if anyone posted a comment about it but I will ask in an upcoming blog post.
David

You are right I would take sleepy over a meniere's...

2010-03-11T19:26:16.217-08:00

You are right I would take sleepy over a meniere's attack anyday.
thanks for the comment and keep in touch. I am interested to see how the droperidol works over a period of time
thanks again
David

Do you know of anyone who has tried this Meniett d...

2010-03-11T16:14:27.875-08:00

Do you know of anyone who has tried this Meniett device? If so how did it work for them & was it able to aliviate a full blown attack once it started?

In my case I had 4 gent injections and it took ove...

2010-03-10T19:39:26.441-08:00

In my case I had 4 gent injections and it took over 2 months for my balance to recover. I was on disability.
But I have received comments from some who say that they recovery time didn't take them that long.
Hopefully yours wouldn't be as bad as mine.
good luck and stay in touch
David

My second day after the gentimicin procedure and I...

2010-03-10T19:11:01.465-08:00

My second day after the gentimicin procedure and I have had several dizzy spells. I thought it was going to be all over for the dizzy spells. I called the nurse and she said this was normal and this meant the medicine was working. I wish I would have known this before so I could expect it. She said it would last for another week but would subside in intensity. They put me on a dyaretic and it says it might cause dizziness....great, just what I need. After your gentamicin injection how long did it take that you were free from this dizziness? I have a great employer that is supporting what I am going through.

I am so glad to hear about someone having a positi...

2010-03-10T14:40:41.556-08:00

I am so glad to hear about someone having a positive experience with their doctor. You are really fortunate.
Thanks for the comment
David

that is a tough call. Some folks have had attacks ...

2010-03-10T14:38:58.440-08:00

that is a tough call. Some folks have had attacks while they are driving and some haven't. I know that if I feel like I am going to have an attack I don't drive. Just be careful.

I hope that the gent injections help you out. It w...

2010-03-10T14:35:16.013-08:00

I hope that the gent injections help you out. It would be terrible if you lost your job due to this disorder.
good luck and stay in touch

I am the same person who had a difficult time gett...

2010-03-10T14:35:01.428-08:00

I am the same person who had a difficult time getting the Droperidol filled in Houston. I finally did and early thisweek ahd occasion to use it. The pharmacist told me to take it in 15 minute increments once an attack begins. She also said in some people if you realize an attack is beginning it can lessen it if taken right away so I carry it with me all of the time. I had to take 2 doses before it kicked in but the nausea etc stopped. It made me extremely sleepy however and I slept for several hours. But that is a small price to pay for relief of the MD symptoms.

that's interesting about the dizziness being gone ...

2010-03-10T14:33:10.510-08:00

that's interesting about the dizziness being gone after the surgery. It's strange what causes and what stops the spinning.

I certainly feel bad for anyone that has this terrible disorder and also have to put up with people thinking he was drunk!

I go to a neurotologist/ENT in Houston and he is w...

2010-03-10T14:28:25.997-08:00

I go to a neurotologist/ENT in Houston and he is wonderful! He has explained to me what to expect, offered options to try, if that doesn't work, we'll try something else. I told him that I was told by a coworker that they knew someone with MD and they didn't have the problems I have. He said, then they don't know anyone with this disease. He has a number of years experience and dismisses nothing about what I am going through or feeling.

I have been experiencing many more vertigo attacks...

2010-03-09T16:14:03.987-08:00

I have been experiencing many more vertigo attacks & this is one of my worst fears to be driving & have an attack & how would I handle it.
I had an attack, fotunately, while I was parking a vehicle & suddenly felt like the two wheels on the passenger side fell off & the entire vehicle was rolling. I realized the passenger was not reacting so it must be vertigo.
My question is at what point do you decide not to drive any more?? I can go 3 moths with no attacks & then this past weekend I had 5 attacks in 2 days?

In my case the severe dizziness didn't start till ...

2010-03-09T14:41:25.261-08:00

In my case the severe dizziness didn't start till after the 4th shot and that took a couple months to get over. But I have to say that eventually it was worth all the pain and discomfort. I do feel better now then I did before the shots.

I certainly understand about the depression. Like so many others who have this disorder I find it difficult at times not be depressed. But the one thing that keeps my spirit up is the immense information about meniere's on the internet. I read as much as I can and I also participate in some of the meniere's forum.
you are definitely not alone.
Stay in touch and good luck
David

Hi Ana, I take the valium every day and I think it...

2010-03-09T14:32:32.386-08:00

Hi Ana,
I take the valium every day and I think it helps but then again it is hard to say what works with meniere's disease. I also take the meclizine but only when I feel an attack coming on.

In my own situation and what others have told me the attacks come and go. You may have an attack every day for a while then you might be attack free for months.

The best advice that I can give you is to continue to read as much as you can about meniere's so you can work with your doctor to find the best way to go to help with the symptoms. And if you aren't happy with your doctor look for another meniere's is too terrible a disorder to just accept that things are never going to get better.
good luck and stay in touch.

Talking about heart problems, I was taking part in...

2010-03-09T05:46:52.943-08:00

Talking about heart problems, I was taking part in a phone survey last week and the lady asked me about health problems. I said I had something she had probably never heard of, Meniere's Disease. She said that actually her father had it, but that when he woke up from heart bypass surgery his dizziness had gone!

Seems he'd had it pretty rough before that, with ongoing problems compounded by abuse from people thinking he was drunk and so on.

I just had my first Gentimicin injection today. Th...

2010-03-08T19:55:21.264-08:00

I just had my first Gentimicin injection today. The pain was rated at a 3 out of 10 (10 being the worst). It was a fullness and a burning sensation numbing my ear. The medicine that went down my eustation tube also burned. I never felt the needle. Will soon see how it works, the doctor used 10cc? I asked for the high dose but the doctor said I would be dizzy for 4 to 6 weeks. This is a terrible disease. I am a pilot and Im grounded for at least 3 months if things go right. It could be worse I was expecting one year to totally losing my medical and looking for a new job.

On March 1, I had my first gent injection. I perso...

2010-03-08T13:16:10.165-08:00

On March 1, I had my first gent injection. I personally thought it was intensely painful, luckily it was only for 30 seconds or so. I was fine after the injection, but 3 days later I quickly went downhill. It started with lightheadedness and nausea. It developed into severe dizziness and being off-balance. All I want to do is sleep. I have become so tired. It has been 1 week since the injection, and I have felt aweful since Thursday. I am currently talking myself out of the second injection, fearing this feeling of sickness. The depression is back, and I just want my head to stop feeling like a swaying fishbowl. Can anyone help cheer me up? dpetro324

Hi everyone, I was diagnosed with Meniere's back ...

2010-03-08T09:27:56.630-08:00

Hi everyone,

I was diagnosed with Meniere's back in September of 09 although some of the symptoms started over 4 years ago. I can honestly say that my life has been turned completely upside down since the diagnosis. I can tolerate the ringing in the ear and the hearing loss but this vertigo has me pretty screwed up. I am on a diuretic and I have been taking meclizine and the vertigo attacks occur daily. I don't know when they are going to hit and how hard they are going to hit. The spinning sensation comes hard and the speed is like warp speed. I have just been given a prescription for valium and I haven't even picked it up. I guess the most difficult part is trying to figure out when my life will be back to normal if ever. I mean will I be able to return to school? Everything feels so out of control... I am new to Meniere's and up to this point I can honestly say that I hate it

Ana

Thanks, It seems that there needs to be more under...

2010-03-07T19:07:28.779-08:00

Thanks,
It seems that there needs to be more understanding of the harm this disorder does to people's emotions.
I appreciate your comments and stay in touch
David

I wish that I could help you but I haven't taken b...

2010-03-07T19:04:31.720-08:00

I wish that I could help you but I haven't taken betaserc. Some of the folks that have written comments say that it has worked for them.
I wish that I could be more help.
David

Hi David I'm in England but fully understand where...

2010-03-07T16:23:23.207-08:00

Hi David
I'm in England but fully understand where your coming from. I got sent to see a specialist who is a " expert" on MD. The trouble is he loves to research but does nothing. If I go to see him he will be really interested in how things are, what effects me etcetera. But he has not once offered ANY advice on how to manage the symptoms or anything else. I don’t bother going to see him anymore as it is a waste of my time and money.

All the best info and advice I have received has been off the net from people like yourself.
Thank you for all your efforts.

Domenic, I know that it can be dreadful knowing th...

2010-03-07T15:49:54.544-08:00

Domenic,
I know that it can be dreadful knowing that you have 2 more gent injections but you have to look past that and remember that it will help you. but it does take time
good luck and stay in touch
David

I had my first injection on March 1. I thought the...

2010-03-07T15:14:25.506-08:00

I had my first injection on March 1. I thought the procedure was very painful, luckily it only lasts for 30 seconds or less. I was told that in 3 to 10 days I would probably get dizzy. Well, sure enough, on March 4 I started to get nausea and dizziness. It is March 7 now and I probably slept 60+ of the last 72 hours. I feel like I'm drunk, like my head is a swaying fish bowl! I'm quickly becoming more depressed thinking this is what I have to look forward to. If my next two injections produce this same feeling I don't even want to go thru with them. Can anybody help cheer me up?

Please let me know if one took Betaserc for more t...

2010-03-07T14:41:21.496-08:00

Please let me know if one took Betaserc for more than 4 months! Any chance to regain balance and get rid of dissiness?

I do not know, I have been taking betaserc for 4 m...

2010-03-07T14:38:57.722-08:00

I do not know, I have been taking betaserc for 4 months now, but no improvement. My doctor said to keep taking it. If any one know of someone who took betaserc for more than 4 months, please let me know. I am dissy, cant keep my balance, any hope of regaining my healthy status....please advice, I am really depressed